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Tomorrow is the big day . . .
A lot has happened since my last post. As part of the preparation for taking Tysabri, I had an MRI of my head taken. My MS hasn't progressed much in terms of scaring in my head (which is good news) but there was a spot that was a cause for concern. When I had my last MRI a couple of years ago, there was a spot near my hypothalamus that showed up. I spoke with a doctor in neurosurgery and he scheduled another MRI for a year later that somehow didn't get done. Anyway, the blip showed up again and this time it "took the dye" better than last time. There is good and bad news about it:
- Bad news: the neurosurgeon that we spoke to said, "In my 30 years of neurosurgery, I have never touched this area of the brain. It's just too risky." So basically I would have to have very serious side effects of having something there before they would even go in an look at it.
- Good news: it has not grown between the time we saw it last and now. If it was cancerous, it would have grown and been the source of numerous problems (double vision, serious headaches, and cognitive disfunction which is code for trouble using my brain at all.)
So at this point we'll keep and eye on it and hope and pray for the best. In other news, my cancer doctor (I had cancer a couple of years ago and went through surgery and chemotherapy) noticed that one of my Lymph nodes is somewhat enlarged and requested that I get a PET scan. PET stands for Positron Emission Tomography. I had one once before. I think this is how it works: They inject you with radioactive stuff and then watch it and take pictures of where they are interested with the "light" that results from the radioactive decay. It's a little freaky because they put on this suit and stand behind this thick metal shield to inject you (standing there in your underwear) with this dangerous stuff. Then they get away from you so that you can incubate until it's time to take the pictures.
Tomorrow is the big day for everything then. I'll have my first Tysabri injection in the morning and in the afternoon I'll do the PET scan. I'm a little nervous but I think it's the right thing to do. Hope all goes well.
1 comment:
Hi Troy,
I have had 13 infusions of Tysabri so far, with my 14th set for October 3.
I had my one year Tysabri evaluation with my neurologist on 9/17 and she was "delighted" that I have not had any relapses in over a year and in her opinion, my disease has not progressed.
I wish you much success with Tysabri, and I hope that tomorrow go smoothly for you.
If you ever wish to visit my blog (which is also my Tysabri diary), go to: http://lauren-livingwithms-aolcomlglbgl2003.blogspot.com/
All my best to you Troy.
Lauren :)
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