It's been quite a while since I last posted. As was obvious, I was pretty upset when I last posted and it's been a while getting out of it. I don't have answers to my questions, however I do have a renewed desire to move forward with my life. I am still on Tysabri. I think that it's better than what I have had previously. I'm also taking glucosamine (the "joint pain" pills that you see advertised in all the stores.) and omega-3 fish oil. I'm also taking a multi-vitamin (centrum) and Celexa. Every morning it's a pill extravaganza as I choke them all down but I think at least some of them help so I keep it up.
My sister in law sent me a link that suggested wearing copper to reduce joint pain. I think it's really only for arthritis and even then, it's probably quack medicine. Just the same, I thought it would be fun to make so I bought some copper from a manufacturer and made a copper arm band (think Egyptian style - my wife calls me Ra when I wear it despite my continued assurances that I'm cooked.) It's fun to wear even if it doesn't do anything.
My fatigue is on and off. Sometimes I think things are all better and then I have a weekend like last weekend when I slept most of Saturday and all of Sunday except church. The results of my last two blood tests indicated that I was slightly Anemic and that may be contributing to the fatigue. My wife has me on a new diet with lots of meat. I really enjoy meat so I'm not complaining. Last night it was barbecued beef, potatoes and vegetables. It was delicious. If my tests come back not anemic in the future, I'm not sure that I'm going to tell her.
My 5th Tysabri treatment is coming up next week. The nurse at the infusion center told me that she had attended a conference where there was apparently some evidence that the efficacy increases until about the 14th infusion and then levels off. I'm looking forward to more treatments in hopes that I can have a little less fatigue.